Centre for Narrative Practice  

‘Ethnic issues’ in the mental health field: Is psychiatry racist? by Suman Fernando.  A keynote at the conference Beyond Multi-culturalism: addressing issues of 'race' and privilege, March 18th 2005, Manchester

Outsider witness practices and group supervision by Hugh Fox, Cathy Tench and Marie, originally published in the International Journal of Narrative Therapy and Community Work, 2002, No. 4

Imagine Belonging by Carry Gorney This account of a community arts project with young people who had been adopted was initially presented at the 2004 North West Conference of Narrative Therapy and Community Work in Manchester.

Welcome address, 2006 Conference of Narrative Therapy and Community Work, Manchester, 'Listening, Witnessing and Hope' by Anita Franklin

Therapeutic Documents: a review by Hugh Fox  This paper was originally created as a keynote at the inaugural Dulwich Centre Summer School of Narrative Practice which was held in Adelaide in November 2003 and subsequently published in the International Journal of Narrative Therapy and Community Work, 2004, No. 1

Introduction to the Day 1 Keynotes, 5th International Conference of Narrative Therapy and Community Work, ‘History and Healing’, Liverpool, 2003

 

 

 

 

‘Ethnic issues’ in the mental health field: Is psychiatry racist?

by

Suman Fernando

 

Paper presented to the Beyond Multi-culturalism:  addressing issues of 'race' and privilege Conference, Manchester March 18th 2005

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Introduction

Today in UK a variety of problems often called ‘ethnic issues’ - formerly called ‘race and culture issues’- have emerged during the past 20 or so years.

 

Ethnic issues in mental health services:

Black / Ethnic Minorities more often:
Diagnosed as schizophrenic
Compulsorily detained under M.H.Act
Admitted as ‘Offender Patients’
Held by police under S. 136 of M.H.Act
Transferred to locked wards
Not referred for ‘talking therapies’
Ref: Fernando, S. (1995) Mental Health in a Multi-ethnic Society. Routledge, London

Over the years, there has been a lot of talk couched in a variety of models – the biological (both madness and ‘race’ seen as genetic matters), the social-constructionist (categories of mental illness are cross-culturally meaningless), the Foucauldian power game ideology (blaming professionals or ‘the state’ – the locations of power) that generalises into argument that ‘white’ systems always oppress black people, and so on. In fact a case can be made for each of these explanations if you choose your data carefully. I do not propose to go along that road but instead to give you a sort of overview of the topics underlying situation in the mental health field in order to get an understanding of what is really going on. My basic argument is that the problems lie, not just in issues of cultural difference and consequent misunderstandings, not just in conscious prejudice that we associate with racism or classism or ageism, not just any one thing really, but a complex situation closely tied up with how disciplines such as psychiatry and western psychology have developed, how we see the human condition, what mental health and illness is all about and so on. But complexity has to be reconstructed as it were for us to formulate some understanding that has practical implications and of course to communicate with one another. And for this we use phrases and words and concepts.

One of the constructs I have found useful is ‘institutional racism’, so I will tend to come back to that. ‘Multiculturalism’ is another concept that some people feel has had its day and we should get beyond it - and the title of this conference suggests this very point. I am not so sure about this – perhaps what we need is to revise our definition of the term. So, I shall mention this term too. Cultural diversity is the in-term, at any rate in the UK, popular with the government and with many people who find the word ‘race’ threatening’. The thing is that these are all words, concepts, phrases. They may be superseded as time goes on or as the context changes. And they are bedevilled by the usual problems with words in that they mean different things to different people. But having said that, we have to get on as best as we could, not get hung up on semantic discussion but on achieving understanding. That is why I think we are meeting today to ‘talk together’, as the blurb to the conference goes, with words - in spite of all the limitations they set to real understanding.

A message in many of my books is that the problems depicted as ‘ethnic issues’ are problems not so much to do with the people but with the institutions and systems that mental health professionals work in. Ultimately they are political with a simple ‘p’ and a lot to do with social justice. The problems are best understood by examining the history of these systems, the white supremacy ideologies inherent in them, how black people are traditionally seen and dealt with in these systems, how traditions get translated into common sense assumptions and so on.

The talk I give today will be rather discursive but I hope will make some sense on the road to understanding. I shall first say a few words about discourse in addressing ethnic issues in mental health services; then take a sort of statistical overview and historical journey backwards in order to broaden the picture, and get to discussing concepts of ‘race’, racism and multiculturalism in the practical politics of British society today. Finally I shall return to the race and culture issues to make some comments – conclusions if you like.

A term used in UK in trying to meet problems faced by black and Asian people is the term ‘racial inequality’. This term has two implications. First that ‘race’ is a valid category for dividing people up – which of course it isn’t. And by ‘race’ I mean what generally goes for categories of ‘race’ based on certain items of physical appearance that we assume indicate deep-seated and widespread differences between people. The second implication in using the term ‘race inequality’ is that the issues – ‘ethnic issues’ are analogous to issues around inequalities related to gender, disabilities, age and so on. There are similarities and cross-references but lumping them all together This is only partially correct in my view. And the disadvantage of this discourse is diverts attention away from racism, which I think has a different qualitative dimension to other ‘isms’.

More recently we have shifted to a ‘diversity’ discourse, taking the focus even further from racism as the possible location of the key to the problems. Anti-racism which became race relations has become diversity management. However, one advantage of the diversity discourse is the implication that remedies are indeed diverse and it is not a matter of a simple quick fix.

Finally, the ‘ethnic issues’ discourse implies that facts about difference are being measured objectively, that medical type research based on measuring ‘factors’ can be used and that we can ignore difficult matters like racism.

Overview

Now I think you may know that the ethnic issues at the hard end of the mental health system are very similar to statistics about the judicial (prison) system. And since the criminal justice system is seen as one for sociological, rather than medical-type, study, we have some pointers from there.

 

Prison Population in UK 2000: Ethnic Statistics

Rates compared to rate in white population

             Males    Females
Black    x 10        x 16
Asian     x 1.5      x 0.6     
Ref:Prison statistics England and Wales 2000 Cited in Race and the Criminal Justice System, Home Office, London, 2002. [http://www.homeoffice.gov.uk/rds/index.htm (downloaded 27 Sept. 20040]
 

But pathways into prison are complex.

 

Criminal justice system and ‘race’ - Home Office Statistics 2000

BLACK PEOPLE COMPARED TO WHITES:
More likely to be stopped and searched
More likely to be arrested
Less likely to be cautioned (and let off)
AND WHEN CHARGED:
More likely to plead not guilty
More likely to be remanded in custody
AND WHEN FOUND GUILTY:
Less likely to be fined / discharged
More likely to receive a sentence
Ref: Variety of sources cited in Race and the Criminal Justice System, Home Office, London, 2002. http://www.homeoffice.gov.uk/rds.index.htm

Discrimination is not at one point but is (as it were) cumulative, the discrimination at each point building up eventually to a very high number of adult black people in prison. Also, discrimination is not often obvious – it is subtle, dependent on assumptions we make about people, stereotypes we have about people, use of discretion, cultural mis-understanding etc.

A similar situation exists in schools.

 

Attainment at primary school African Caribbean Children in Birmingham 1998/9 Statistics

BASELINE ATTAINMENT = 20 % ABOVE AVERAGE
(ATTAINMENT DECLINED AT EACH KEY STAGE)
ATTAINMENT AT KEY STAGE FOUR = 21 % BELOW AVERAGE
“Available evidence suggests that the inequalities of attainment for African-Caribbean pupils become progressively greater as they move through the school system; such differences become more pronounced between the end of primary school and the end of secondary education”
Ref: Gillborn, D. & Mirza, H. (2000) Educational Inequality - Mapping Race, Class and Gender - synthesis of research evidence.  London OFSTED.

 

Black children in British schools do well when they start at school but fall out of education over the next few years – especially in the case of boys. At least part of the problem is stereotyping and teacher expectation.

 

Experience of black children in multiracial primary schools (1992)

“The typical experience for African-Caribbean pupils was one of high teacher expectations for bad behaviour and high incidence of teacher disapproval, criticism and control” 
Wright, C. (1992) ‘Multiracial primary school classrooms’ in D Gill et al. Racism and Education - Structures and Strategies. Sage, London.

We see the result in rates of exclusion from school.

Permanent exclusions from school (1997/8)

 

As  percentage of all school-age children in each ethnic group

All ethnic groups 0.18%
Black Caribbean 0.76%
Black African 0.29%
Black Other 0.57%

(Total number of all exclusions=12,076)

Ref: Annual Schools’ Census 1999 cited in L. Appiah and N. Chunilal (eds.) Runnymede Trust Briefing Paper December 1999. Runnymede Trust, London 1999.

 

And this connects with prison statistics because it seems that many boys who are excluded from school end up in prison.

 

School exclusion and offending

Two thirds of the population of Youth Offender Institutes  (YOIs)  had left  or been put out of school at age of 13 or under.
According to Home Office Research
“The 13,000 young people excluded from school each year might as well be given a date by which to join the prison service some time later down the line.”
According to Martin Narey - Director General of the Prison Service (2001)
Ref:  John, Gus (2004) ‘Behaviour, mental health and underachievement’, Talk given at Conference Sustainable Recovery, Rehabilitation and Prevention, held at Manchester 20-21 September, 2004. 

So we can see that both discrimination and exclusion accumulate at various points - school, policing, courts etc. leading to prison. Extrapolating from this to the mental health field, I believe similar forces operate at various points on the journey to being sectioned, stigmatized and medicated.

 

Cumulative discrimination and exclusion

Suspicion of madness
Inappropriate assessment
Diagnosis affected by stereotypes
Sectioning affected by fear of dangerousness
END RESULT: Excessive compulsory detention
Excessive medication
Loss of trust
Fear and frustration all round
Anger and resentment
VICIOUS CIRCLES RE-INFORCING CUMULATIVE FORCES

There is the initial suspicion of ‘madness’, through inappropriate ways of making psychiatric assessments, diagnoses based on stereotypes, sectioning through fear of dangerousness etc. ending up in high compulsory admission rates. In other words, over-representation in prison or as schizophrenics compulsorily detained and over medicated may arise in similar ways. There is no reason to think that this applies in UK only. As an American psychotherapist Hardy (2001) writing in a publication on the Dulwich Centre website says, for the African-American, ‘chains and plantations [have been] replaced with bars and razor wire’. Jesse Jackson speaking in London just last week pointed to the vast resources implicated today in what he called the industry of imprisoning African-Americans in the southern states of the US.  And anecdotal reports indicate that black Europeans on the mainland are over-represented in both secure psychiatric and prison systems.

What I shall do next is to consider briefly the meaning of racism in today’s world, especially the concept of institutional racism, then look at examples of racism in the history of psychiatry and try to apply the understanding that comes out of this to the experiences of black people at the ‘hard end’ of psychiatry..

 

Race, Racism and Multiculturalism

The concept of ‘race’, as we understand it, is based on selected aspects of physical appearance especially skin colour. But ‘race’ as a biologically determined entity has been dismissed in scientific circles as a basis for dividing up the human race (Jones, 1981).  As the book Not in Our Genes (Rose et al., 1984) puts it: ‘Human “racial” differentiation is indeed only skin deep. Any use of racial categories must take its justification from some other source than biology.’ (1984: 127). The source of course is social, historical and political and so some people refer to it as ‘social-race’ (Omi and Winant, 1986 quoted by Estroff and Zimmer, 1994). But the tendency to think of people in terms of their ‘race’, ‘race thinking’ (Barzun, 1965), persists in spite of the unscientific nature of ‘race’ itself – mainly because of racism. 

History of racism

Although racism may go further back, (see Fryer, 1984), it was during the times of slavery and colonialism that the dogma of racism became consolidated in European thinking.  As Europe entered the period of its ‘Enlightenment’ in the seventeenth century, liberty and freedom were highlighted and so-called ‘European values’ were born. Yet at that very time, slavery, the antithesis of freedom, was in full swing.

Toni Morrison (1993) is not surprised by this apparent paradox: ‘The concept of freedom did not emerge in a vacuum. Nothing highlighted freedom - if it did not in fact create it - like slavery.’ (1993: 38). It seems that racism is the construct that helps us to understanding – the key to understanding - this apparent contradiction in European thinking. I suggest that, if we want to understand why there are ‘ethnic issues’ or ‘racial inequalities’ in the provision of mental health services that are supposedly based on notions of  ‘illness’ and ‘therapy’ within a medical system that is supposedly a humane pursuit arising from liberal ideology, here too the key is racism.

Modern racism

In his book Racist Culture, Goldberg (1993) argues that the nature of racism is often driven by history and context. The ways in which people experience racism varies. Thus racism during American slavery differs from post-slavery segregationism and each from current expressions of racism in the US. Racism in South Africa during the times of apartheid differs from that expressed through inherent economic inequalities in the post apartheid era. Nineteenth century British racism in the colonies differs from current manifestations of racism in the UK. Racism experienced by a person who looks African or Caribbean is different to that experienced by someone who looks Chinese or South Asian. Unfortunately this gives rise to misunderstandings and consequent divisions between people – divisions that undermine the common struggle. Another problem for black people highlighted recently by Jesse Jackson.

In such a system, manifestations and locations of racism change constantly, especially in the face of opposition, need for political correctness in the language used, and so on. Thus, instead of stating – or implying – that ‘other races’ are inferior, possess some unsavoury characteristic or pose a threat to social cohesion, the reference is to ‘other’ cultures, religions, ethnic groups or kinds of people (such as refugees), thought of in the same way as ‘races’, that is as groups that are unchanging and easily recognisable usually by physical appearance.

Philomena Essed (1990), a black woman from The Netherlands, talks of the ‘everyday racism’ that is the personal experience in the course of day-to-day interactions between people, implemented through ways of behaving and socialising. The people who exhibit racism are not necessarily overtly (racially) prejudiced, although if one examines their attitudes in some depth racist attitudes may be uncovered. If this approach is taken further, racism may be manifested in social and political systems because people unwittingly collude in it, usually because they gain from doing so. This notion of ‘institutional racism’ first appeared in a book by Stokely Carmichael and Hamilton (1967) - Black Power. The Politics of Liberation in America. In the report on the Stephen Lawrence Inquiry, Macpherson (Home Department, 1999: 28) defines it as follows:

 

Institutional Racism

The collective failure of an organisation to provide an appropriate and professional service to people because of their colour, culture or ethnic origin.  It can be seen or detected in processes, attitudes and behaviour which amount to discrimination through unwitting prejudice, ignorance, thoughtlessness and racist stereotyping which disadvantages minority ethnic people’.
The Stephen Lawrence Inquiry by Sir William Macpherson (London: Home Department, 1999: 28)

The problem with the concept of institutional racism is that it seems to play down the personal impact of racism on the individual and may appear to take responsibility for racism away from the individuals who exercise power over others. (‘Its nothing to do with me it’s my institution.’) I think we need to remind ourselves that the institutions we talk of are not the bricks and mortar – they are composed of people, include us all black and white.

Culture

At one time culture was seen as a relatively fixed system of traditional beliefs that are passed on from generation to generation, for example Leighton and Hughes (1961) envisaged culture as being composed of ‘shared patterns of belief, feeling and adaptation which people carry in their minds’. But this restricted approach to culture has given way to culture being seen as something that cannot be clearly defined, as something living, dynamic and changing – a flexible system of values and worldviews that people live by and create and re-create continuously, a system by which we define our identities and negotiate our lives.

So a multicultural society is not one where there are many cultures, each distinct from one another, but a society that is culturally hybrid. In the UK, the influences that impinge on our society are from African, Caribbean and other ‘non-western’ cultural traditions as well as the traditional ‘European’, including the Jewish-European, cultures. It is a society where a plurality of cultures involves us all. But emphases vary so that ‘cultural groups’ can be delineated where certain cultural forms such as marriage customs, ways of thinking on particular matters, religious affiliation, main language etc. mark them out. But these groups are seldom cut off from each other or from the main majority culture, at least in the British scene.  

What is important to grasp is that the disciplines that inform mental health services (mainly psychiatry and western psychology) have grown out of a particular and narrow culturally determined understanding of the human condition, ideologies about life and so on. In short, society is multicultural but the disciplines are unicultural.

Racism in psychiatry

 

Psychiatry and western psychology came into being about two to three hundred years ago within western European culture at a time when crude notions of white racial superiority became deeply embedded in that culture, resulting in a variety of myths, stereotypes and superstitions about black people and about cultures seen as ‘non-European’, ‘Oriental’, or ‘African’ (see Said, 1978; Bernal, 1987; Eze, 1997). As psychiatry developed in the nineteenth century on the basis of rising asylum numbers, Social Darwinism, by placing different races on a hierarchy, played a significant part in the theories that caught on within psychology and psychiatry. Race was deeply implicated in the concept of degeneration (Morel, 1852) as an explanation for both mental disorder and criminality, leading to the construction of schizophrenia and the rise of eugenics within psychology. I shall illustrate the representation of race in the history of psychiatry by picking out a few examples.

In the nineteenth century, psychiatrists in the US argued for the retention of slavery, quoting statistics allegedly showing that mental illness was more often reported among freed slaves compared to those who were still in slavery (Thomas and Sillen, 1972). And it was at that time that the now infamous mental illness drapetomania was constructed - an illness diagnosed among black slaves which (according to Cartwright, 1851) ‘manifests itself by an irrestrainable propensity to run away.’ When John Langdon Down (1866) surveyed so-called ‘idiots’ and ‘imbeciles’ resident in institutions around London, he identified them as ‘racial throwbacks’ to Ethiopian, Malay and Mongolian racial types - mostly, he said, they were ‘Mongols’. 

Early in the twentieth century, Stanley Hall (1904), founder of the American Journal of Psychology and first president of the American Psychological Association (Thomas and Sillen, 1972: 7), described (in a standard text on adolescence) Asians, Chinese, Africans and Indigenous Americans as psychologically ‘adolescent races’. About the same time, Kraepelin (1904) observed that guilt was not seen in Javanese people who became depressed because, he said, they were ‘a psychically underdeveloped population’ akin to ‘immature European youth’ (Kraepelin, 1921). Throughout most of the twentieth century, the apparent rarity of depression among Africans and African-Americans was attributed to their ‘irresponsible’ nature (Green, 1914), ‘absence of a sense of responsibility’ (Carothers, 1953) or a ‘striking resemblance between African thinking and that of leucotomized Europeans’ (Carothers, 1951: 12)- in other words their under-development.

This under-development theme dies hard and has become woven into thinking in psychiatry and psychology, affecting diagnoses and assessments It surfaces for example in the theory on what is put forward as ‘cultural’ differences in the ability to differentiate emotions proposed by Julian Leff (1973, 1981) – people from developing countries and African-Americans apparently being at a lower level on this ability when compared to people from developed countries and white Americans - and of course in recurring versions of the racist IQ movement (e.g. Herrnstein and Murray, 1994). 

When Carl Jung visited the United States and found it difficult to understand how white Americans could be so different culturally from (what he saw as) their racial counterparts in Europe, he concluded that they were affected by ‘racial infection’ from living too close to Black people. ‘The inferior man exercises a tremendous pull upon civilized beings who are forced to live with him...’ (Jung, 1930). And when Freud (1915, 1930) envisaged that the ‘leadership of the human species’ should be taken up by ‘white nations’ as opposed to ‘primitives’, the latter (to him) included Melanesian, Polynesian, and Malay people, the native people of Australia, North and South America and the ‘negro races of Africa’ (Hodge and Struckmann, 1975). And of course Freud’s Totem and Taboo argued for an affinity between thinking processes of non-European ‘primitives’ and European neurotics (see McCulloch, 1995).

So it is against this background that we come to the present.

 

Race and Culture issues

Ethnic issues in Mental Health Services

Black / Ethnic Minorities more often:
Diagnosed as schizophrenic
Compulsorily detained under M.H.Act
Admitted as ‘Offender Patients’
Held by police under S. 136 of M.H.Act
Transferred to locked wards
Not referred for ‘talking therapies’
Ref: Fernando, S. (1995) Mental Health in a Multi-ethnic Society. Routledge, London

The reasons for the differences represented here are complex and debated over - just as statistics for ethnic differences in (say) rates of police stop-and-search are debated over or the reasons for disproportionate numbers of black people in prison are debated over. But to many black people who experience stop and search, experience being patients of the mental health services, and to anyone who understands the nature of institutionalised racism, who know their history, there is very little doubt as to what the real problem is, although (as with the criminal justice system) proving it in a legal sense is not easy.

Today, in many western societies racism is subtle through institutionalised ways of doing things and this is more difficult to identify than is blatant racism and so presents very pernicious effects. It comes through in the training of professionals that instills a quite unrealistic confidence in the superiority of the body of knowledge and ways of working within western psychology and psychiatry as opposed to ideas and knowledge about human beings evident in non-western cultures. And into this (say) professional arrogance comes racism. In practice, mental health assessments usually fail to allow for ideologies about life, approaches to life's problems, beliefs and feelings that come from non-western cultures. The black experience in society is not given credence, even if the existence of personal discrimination is recognised in a theoretical sort of way. The alienation felt by most black people is usually seen as their problem (and this often leads to ‘treatment’ aimed at getting people to recognise 'reality') rather than a problem for society as a whole. In such a context, stereotypical assumptions about black people influence assessments that professionals make. Way back in 1993, the report of the inquiry into deaths of three black youngsters in Broadmoor Hospital (SHSA, 1993) called for research into the problem created by the stereotype ‘big, black and dangerous’, but all that happened was that the hospital started cultural events with West Indian food etc. largely attended mainly by white people (for the food).

I have not got the time to pursue issues around diagnosis but I suggest that among the factors that influence diagnosis are the images that diagnoses carry and the images that people making diagnosis carry in their heads, often unwittingly. Thus, alienness is linked to schizophrenia (as a diagnosis) and to biological and / or cultural inferiority (as a judgment that is often implicit, rather than explicit). Race comes into both these concepts - alienness and inferiority. And then, what often happens in practice is that we make diagnoses because we want to treat - and the difference between treatment and control are seldom very clear, especially when we are faced with people we do not understand or are frightened of.

Again, consider what happens when psychiatry is called upon to assess dangerousness in relation to mental illness. We have really very little to go on and so we turn to common sense images of dangerous people as a guide - and where do we get our common sense from? And racist images are implicated in the images underpinning both concepts. Just as some nineteenth century American psychiatrists saw run away slaves as drapetomanic, it is not difficult for us to see such angry, undesirable, ‘aliens’ as ‘schizophrenic’ or ‘psychotic’ - and that is how racism operates.

 

 

Of course when major tranquillisers keep people so diagnosed quiet and subservient, a self-fulfilling prophecy confirms our ‘clinical acumen’ - or should I say ‘use of power’.

Conclusions

This talk has dwelt on what I know most closely, namely the mental health system, in particular the practice of psychiatry and the nature of so-called ‘ethnic issues’. I hope my presentation helps in understanding more general issues of racism and privilege in mental health and psychological practice, and where we go to if (as the conference title suggests) we go beyond multiculturalism. I hope I have given you a feel of the complexity of the issues that we all ‘ethnic issues’ in the mental health field. For a professional providing a service - and many of you may fall into this role in one way or another too - the need is to get an understanding of what is wrong and then work out how to put it right. I have no doubt that neither is simple. Words, phrases and concepts are mere tools for us to use if and when appropriate, and not ends in themselves. So whether we stick with the concept of multiculturalism, whether we use ‘institutional racism’ as a concept, these are practical issues – essentially of whether these words help in understanding and bringing about changes for the better, to bring about just services or at least less unjust ways of doing things.

 

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Omi, M and Winant, H. (1994) ‘Racial formation’, in M. Omi and H. Winant (eds) Racial Formation in the United States: From the Sixties to the Nineties, 2nd edn. New York and London: Routledge, pp. 53- 76 (reprinted in P. Essed and D. T. Goldberg (eds) Race Critical Theories. Malden, MA and Oxford: Blackwell (2002), 123-45).

Rose, Steven, Lewontin, R. C., and Kamin, Leon (1984) Not In Our Genes. Biology, Ideology and Human Nature. Harmondsworth: Penguin.

Said, E. W. (1978) Orientalism. Western Conceptions of the Orient. London: Routledge & Kegan Paul, Reprinted with a new Afterword Penguin Books, Harmondsworth 1995

Special Hospitals Service Authority (SHSA) (1993) Report of the Committee of Inquiry into the Death in Broadmoor Hospital of Orville Blackwood and a Review of the Deaths of Two Other Afro-Caribbean Patients: ‘Big, Black and Dangerous?’ (Chairman Professor H. Prins). London: SHSA.

Thomas, A. and Sillen, S. (1972) Racism and Psychiatry. New York: Brunner/Mazel.

Wright, C. (1992) ‘Multiracial primary school classrooms’, in D. Gill, B. Major and M. Blair (eds) Racism and Education. Structures and Strategies. London: Sage.  

 

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Imagine Belonging

By 

Carry Gorney 

This account of a community arts project with young people who had been adopted was initially presented at the 2004 North West Conference of Narrative Therapy and Community Work in Manchester.  It was accompanied by exerpts from the CD-ROM that was produced as a result of the project described.  This CD-ROM (Imagine Belonging) is available for a small fee from Carry Gorney who can be contacted on carrygorney@btopenworld.com

 

Introduction

Imagine Belonging was a project involving young people children and adults. It was about telling and listening to stories about adoption. It offered the opportunity for small groups to share their experiences, to write, to draw, use photos and video to create a CD ROM.

Imagine Belonging aimed to help others understand what it is like to ride the roller coaster of adoption and  be brave enough to meet the challenge .

Imagine Belonging invited young people and families to reflect on help they would have liked from the organisers of their lives to help others in the future.

The CD is the culmination of five months work by six young people. They also involved another twenty-five children and adults, through carefully prepared interviews and questionnaires. This second group contributed further different perspectives on the issues and support needed around adoption.

The Young People met twice weekly and 2 Saturdays over a three month period. They spent the time talking, making coffee, eating birthday cake, texting each other on their mobiles, sometimes drawing, sometimes writing poems, sometimes elaborately decorating their names with sequins, glitter, feathers and silver pens.

They brought photo albums of the many people in their lives. They shared anecdotes of their early years. They also spent a lot of time eating sandwiches and watching each others videos of when they were small- and cute.

We went to the park and videod each other leaping over stepping stones, kissing statues, wearing funny hats, running, riding bikes.  We sat on the grass chatting and they  listened attentively to each other's stories and treated their experiences with respect.

The concept of Imagine belonging

The title, was  based on he project  Imagine Chicago, which was a positive investigation of a city by the community. This project was to be a positive investigation of the issues surrounding adoption.

It divided into three sections

·        Group work

·        Writing, photographing  and drawing material

·        Creating the CD

It was based on three elements:

Understand

Imagine

Create

  • Understand  - The group of young people shared and reflected on past experiences. They thought about the people in their stories and the effect of their experiences on everyone involved

  • Imagine, / envisioning This was a process of discovery, identifying what worked in the past, what strengths and qualities they developed from these experiences. Who was there to help and support them? What could have been done differently?

  • Creating the future together. They used the previous discussions to construct questionnaires about the future to advise other families and professionals.

This work took place within the group, and then was extended to the young people using questionnaires and undertaking interviews with families.

The whole project took place through continuous dialogue – discussing what would need to happen to help others in the light of what happened to them

A.  Community work

The background to this project was that I had been asked to help in setting up a post-adoptions service.  In setting up this service I felt really strongly that we should have the voice of the community for whom the service was going to be: that was the parents and the young people who’d been adopted. I thought it would be good to have their voices in an animated form somehow, communicating what their experience was and I started writing workshops for the parents and  I started to work on the CD Rom with the young people.  I wanted them, the young people, to have as much agency as possible and to actually express what their need was and, hopefully, afterwards, to be instrumental in shaping the kind of project that will be set up.  I had been hired to set up a post adoption service and this was a first step towards that.  There was a gap to be bridged between people’s ideas of a post adoption service which might be seen as therapeutic with maybe a clinic or whatever, and on the other side there’s actually what happens when you go out into the community and you make something happen at a grass roots level. I think they sit quite separately and I think that the people who wanted me to do this saw that I had a vision of creating the bridge that goes from one to the other and that became very interesting to them. The idea that you can actually do something that is therapeutically relevant but you can do it in a community context;  that it doesn’t have to be separate and in an office and in a clinic, but it can actually be part of a series of conversations you have about a theme;  and not just about me and a kid but about a group of young people together, or a group of parents together, or the parents and the young people together;  that they can have a number of conversations that are connected with this theme and out of that can emerge something that’s therapeutically very significant.

B  A two way process

In my own family I adopted a child, Paul, who is now ?? years old and my experience as someone who adopted a child affected my relationship with the project.  For me the project was like a journey of knowing and not knowing.  On one level I felt as if I had a sense of knowing, that I knew about this at a number of different levels and so my footsteps are alongside any adoptive parent, and I see my son’s footsteps alongside any of the young people’s. On the other hand, I also feel there’s so many areas that I don’t know and I don’t understand and still are very mysterious to me in relation to what my son and I have been through and what our journey still is.  And I’m still searching and wanting to know and wanting to understand.  And my heart lurches whenever I hear about a child who’s been adopted in my work context or on the telly or wherever; something in my gut churns;  it’s very much central now to my whole being and to the way I view the world.  There’s probably many adoptive parents would say the same thing.  And I still carry my child’s vulnerabilities and the longing to make everything right and the knowing over time that that doesn’t happen;  it’s like the scar where I broke my leg – I’ve got that scar, it’s a part of me, it doesn’t disappear but it becomes integrated into the rest of my leg.

I was interested to work with adolescents as my son’s adolescence has been the most difficult part of our journey together and by chance it was the age group that had the right number of people which is how we ended up working with teenagers in the project.  I think I was very nervous about that because I’m a lot older now and I thought will I be cool enough and these sort of things.  But also I think that I needed to put something to rest about the turbulence of my son’s adolescence and I think that I’d become very frightened of teenagers in life. Before my experience with Paul as an adolescent I’d worked a lot with teenagers and really enjoyed it and yet I’d become very fearful of adolescents and felt in danger of turning them into a kind of different species that I wouldn’t be able to connect with.  I think that there was really some healing that took place for me in my connections that I made with these six kids who took part in the project and in sitting with them and listening to them and supporting them and asking them the questions about their journey.  And I think that I was very touched by how they didn’t touch on their own adoptive families very much in their stories: they focused on other parts of their stories and it was like the acknowledgement of the preciousness of that adoption experience, whether it was good, bad or indifferent – and it was very complicated for some of the kids.    And there was the recognition that this new parenting, this re-parenting, is fragile and needs to be protected.  It could break apart and ours, mine and Paul’s, could have broken apart as well, and they reconnected me with that.  They also reconnected me with the fact that it didn’t break apart.

One of the issues for me was how far am I a therapist and a mature grown up and sensible facilitator and how far am I somebody who is actually saying “Look, this is also a part of my experience”. I chose the latter. I was careful what I said and didn’t say, but I was open about my own experiences and the very first session we had I told them that I was an adoptive parent and that I’d been a single mum and so on.  Sarah turned to me straight away and said “Has your son ever tracked down his birth mum?”  And I did explain very simply that he’d been with her before he came to me and she said “How did you feel about the birth mum then?”  I did express how I felt very wobbly about that and that although I felt that if he wanted to contact her again I wanted to encourage him and make him feel it was very possible, nevertheless, in my heart I felt “suppose that he loves her more than me?”  And Clare looked at me across the circle and said “Ah yes, jealous; you’d be jealous of the first mum” and she was right. And, you know, I’d never put those things into words before this project. It felt like I was just another human being dealing with the same issue and the same sort of depth of these relationships.  It made me step into the circle of the group.  I wasn’t standing outside, I was affected.  I didn’t tell a lot of stories about Paul and I but the questions I asked were very informed by my experience and I think that they understood that.  They sometimes said “What did you do?” and “If that would have been you, what would you have done?” or “If you’d been my mum and she was going on at me, would you be the same?” or “Were you the same with Paul?” 

D.  Role within the group

I don’t think they saw me as a therapist at all, and I think they were quite shocked when they  heard after we had finished working together that I was a therapist.  Sarah once said I’m more like a teenager than a grown up.  And sometimes I was absolutely like no more or no less than a teacher and pushing them to finish their homework and finish their projects and shouting at them for not doing it.  As I told them, like I shouted at my son Paul when I was a mum.  And they knew that you don’t do that as a therapist;   you’re not so pressured as a therapist and I was like, , “For God’s sake,  will you just go into the other room and finish that drawing, you’ve got 15 minutes” 

But I think they knew that I was passionate about what they said, and that I listened when something came up;  that I really wanted to know and that I was  passionate about it, that it was more than being curious, interested, and all the things that we’re trained to do.  I think that they could tell that I had a real passion about this and that I carried it in my heart. 

E.  Transitions and building belonging

Some of the kids in the project brought the videos that had been made in their foster families or in the children’s homes, the videos to show to prospective adopters, and we sat and we ate sandwiches and we watched these videos.  They were videos of them when they were little, sweet.  They were anything between 3 and 6 or 7 years old, and I don’t know if I can say this  without crying while I’m telling you, but when I saw those kids in the videos, my son Paul was 5 when I met him and when he came to me he came with a plastic bag with his possessions in it and he was wearing a little pair of brown sandals and one sandal had an Elastoplast on it because the buckle was broken and it’s an image that I will never forget.  It’s just that vision of this little kid with nothing in the world except his plastic bag and not bringing anything else, and he walked through my door;   and he had to take as much responsibility as me for creating a life that would work. 

And there’s something about that and when he cleaned his teeth that night, and I was sitting on the edge of the bath watching him, trying to chat casually, and I was looking at this little person – can you imagine this little 5 year old and I was watching the back of him cleaning his teeth, and I could see his face in the mirror; he was in his pijamas and I was thinking this kid is a total stranger and how somebody could be so little and be in the position of being a total stranger.  I couldn’t begin to imagine what that must have been like for him.

And working with the kids reconnected me with that and I don’t think that was easy because when you look back on any part of your life with hindsight you think you could have done it much better; you could have done it differently and I remembered things that I’d done that were not fair and how I expected too much. They really reconnected me with the little boy and I’d not expected that because they were teenagers.  But because they focused on their own experiences when they were little, and they focused on their transitions, on being taken away I thought much more about Paul’s transitions than I had done for many years, if I had ever thought about as carefully. 

I suppose it’s a thing an adoptive parent wants to brush over because you want to make it right and because it’s your life with the child that you’re focusing on, and it’s actually very painful for you to look back and think about what it meant to the child and to its birth parents to experience that separation, what it meant to them when that separation happened.  And that’s what the kids on this project asked me to look at with them really from day one. 

F.  Changes in relationship with Paul.

I thought a lot about this issue of belonging or not belonging and of being on the outside or on the inside.  I think that Paul and I have talked a lot about that since the project and we somehow had conversations at a different level about these issues  - about his curiosity and his being drawn towards people who feel that they are marginalised, and that they’re not in the mainstream of life or society.  Those are the people that he looks for and wants to be part of. 

I don’t think we would have had these conversations at all were it not for the project, because I think that I’ve been so encouraging of him and supporting him to fulfil his potential within the framework of the mainstream that I might not have left the space for it.  But the space opened up and he asked me at different times how the project was going and, through talking about it, the nature of our conversations and the nature of our relationship changed.  I think maybe he assumes now that he can talk more about his birth father and his birth mother and other areas, other relationships and that I can tolerate listening to them in a way that he didn’t know earlier that I could.  I think that he sees in me that I’m not fixed, but I can bear it if he asks himself questions about himself and who he is and his own identity and who’s been part of his identity in the past and so he is able to actually think some of those things through, talk about some of those things with me.   And he wants to know more about me in relation to that.  And for the first time he’s asking me what happened in the relationship that I had which broke up when Paul was little and about the different areas of my life and how I’ve been changed.  Our conversations are different.  And I have let go of feeling I have to take responsibility for his future, or for terrible things that might happen.  I can just enjoy being with him in the present.  It’s the most relaxed the relationship has been with him since he hit puberty.

I think that the way that he is now, the way he leads a fulfilled and rich and constructive life is an affirmation of the positive things about our relationship.

G.  Letting the young people know about the effect on Carry’s life.

Since thinking about this I’ve been planning to get in touch with the kids and tell them about how my life has been affected by the project.  I guess that from feeling that there was something the matter with you if you’ve got to be adopted they will think that they’ve experienced things that are rich enough and that they’ve been able to express in ways that have influenced somebody who they would see as being on a completely different level, being educated and being respected.  I think they’d maybe quite like that.  I think maybe they would feel valued.

G.  Intentions in adopting

When I think about my intentions in adopting, I think that I’d grown up with images of rescuing and being rescued.  As a member of the second generation of a Jewish family who came to the UK as refugees, since I can remember I’ve had a sense of people who weren’t rescued, people who were parents who died and of parents who survived.  I think that what seems strange to other people was why didn’t I just get married and have a family. Like many people who are second generation, I think that I had an idea that it actually was very dangerous to have a family, that the world’s a dangerous place, so one way of creating a family was to actually find somebody who needed a family.  I think that I’d always wanted to do that.  It became clear to me when I was in my thirties and that is what I did. In the late sixties and early seventies I lived in a commune and we really were exploring the idea of being wider, of creating communities more than nuclear families and I felt that I’d grown up in a family that I was quite pleased to break out of, that there were things that were  very closed and stifling inside a family of Jewish refugees.  I really liked the idea of the commune and the living and creating your life, weaving your life very closely together with people who you chose to be with and I think that the adoption came very naturally out of that.

When I was a kid I, my mum says that I asked her “If you would have been going on a train, if you would have been taken away and been deported to one of the camps in a train, would you have thrown me out of the window to be saved or would you have taken me with you?”  I think I was very young when I asked this question and it’s a family story, and I suppose in a way the issue of adoption for me relates to the baby from the train, who rescues the baby from the train and what happens to that baby.  Paul is my baby from the train.

H.  Rich peopling and flexible families.

When Paul and I talk now about his other family, I feel I can just tolerate the idea that there are more families, there are more people, there are more networks around him and us.   There are the people that we know are around, the people you see,  and then there were people who were there and aren’t here any more and yet they are there but they are not there.  I think I understood, because I’d been brought up with that, and that fitted Paul’s family, those stories that Paul brought into our lives fitted and I guess I understand them, and certainly can live with them now. 

I think the other thing that does sustain me is the idea that none of this is fixed.  Since Paul has grown up I’ve got a new partner which brings another dimension of family; there’s my partner’s mum, so there’s another granny; there’s his daughter so there’s another young person;  and she’s in France so there’s another language I really like this because it feels like even families can evolve and change and it’s a very wide radius.  This sustains me and I think it sustains Paul as well.  I think  we often feel out of control in relation to our birth families quite aside from adoption, and that they feel very fixed and really different generations.  I’m sure that people who were brought up in the fifties and early sixties felt things were much more immovable, or much less movable and less flexible, and there’s something about the family now in the way it’s evolved that’s not set in tablets of stone.  The rules and regulations aren’t as fixed perhaps and the beliefs are more fluid.  And I find this very hopeful.

I.  Hopes for the project

In relation to the project, I hoped that we’d create a community of parents and young people who would be supported by the agency who had commissioned the work and who would actually generate an energy and create something that would carry on.  At the conclusion of the project we had a launch for the CD-ROM and there was a community there.  As well as it being a celebration for the kids, there was a collective energy that was very exciting and I think that the fact that the young people produced something that was their expression of their experiences met with my hopes.

And there are further steps, but these things don’t happen at immediately. They’re often the sort of things that percolate through over time.  There is definitely another piece of community work to be done.  These parents, with whom I had done the writing workshops, and those kids are potentially a very energetic community and could provide a valuable resource in relation to the development of a post adoption service that gets away from the concept of therapeutic provision and that would provide an altogether different model of service.  And then who knows what other services might see such a thing and offer community building provision instead of therapy?  And what might this signal for dominant understandings of distress?

Conclusion

I'd like to finish by leaving you with some of the words of one of the young people who was part of Imagine Belonging:

Making the CD-ROM sounded fun, and I thought it would be useful    useful for other adopted children and people like that.  I thought it would help mothers of adopted children or parents of adopted children understand what it’s like being adopted.  It’s not just a normal life, even though some people think it is.

 If you’re in an adopted family, like I am, where there’s a birth child in it as well, you often feel left out or that he gets more.  And I always blame the fact that, if my mother tells me off, it’s to do with me not being her real child. 

And when you first tell people you’re adopted, it’s like “Ah, I feel so sorry for you” and all this and it just gets me mad.  I don’t like sympathy, it annoys me.  I’d like people to respond that I’m not weird, not not normal. 

When you came to Imagine Belonging it was good because you could tell people your problems and they’d talk to you about it.  And I met people and went through some good and bad times with them.  It was good to meet other adopted children instead of being the odd one out.  Before I only knew one other adopted child.  Meeting others was interesting ’cos they could tell their stories of why they were adopted and it got me more interested about other people’s lives as well as just me ... I was self-centred a bit, like, oh it’s me, I’m special, I’m adopted.   

One effect of this has been that I seem a lot more open now.  If people